So the week started off with a visit from my lovely Sports Therapy buddies Tanya & Erin, who came down from Kent for a catch up and glass of Prosecco! We headed out for dinner and had a lovely time, was nice to catch up on all the hockey gossip. Even if they did give me a polishing cloth for my soon to be shiner, plus a mammoth supply of Muller Corners!! Feeling a bit crappy with a sore throat, dizziness, passing out etc, and knowing I'm on my 7-10 day lowest blood count, I headed in to St Mary's to make sure I hadn't got an infection. Couldn't have asked for better care! Straight into A & E in a private little area, away from germs, and attached straight up to another trusted friend called Drip! They ran an ECG to make sure my heart was working fine, I'm assuming all was ok as nothing more was said! So I spent all afternoon and evening having IV antibiotics and lots of blood taken to make sure Sepsis wasn't setting in. I had the pleasure of my doc being on his very first shift, very caring and attentive, but had no idea where anything was, comical! They wanted to keep me in overnight, but last night Id had enough of hospitals and just wanted to come home, so I was discharged at midnight, on the promise I would return if I became worse. This morning I woke about 4am absolutely fine, went downstairs, and went to sit on the sofa. A simple task I hear you think. No matter how I sat, lay or anything I couldn't sit without excruciating pulsating pain going through my spine. I tried everything from sitting, crouching, lying down, nothing would ease the pain, so I ended up just standing around! It was a strange pain, moving and bending my back it didn't hurt, but sitting it was excruciating. Next came the fun journey to the hospital. Half hour of having to sit down is a harder task than I thought. Straight into majors at A & E again, and I could barely stand by time got there, the pain was worsening and like nothing Id ever had before. Along comes a nurse to get the canula in my arm, an even harder more painful task than I could handle. I couldn't sit down without being in pain, but they weren't allowed to do it with me standing up incase I passed out. There were tears, I just couldn't take it. Never known two minutes to go so slowly!! But it was in, and soon followed was lots of morphine! The best drug in the world right now!! It kicked the pain into touch, finally. Although it gave me a very drunk/light headed feeling for the rest of the day, I wasn't in pain, and I could finally sit down!! It has been a very long day at St Mary's, docs couldn't understand at first what or why I was in pain. There was no infection, my scans a few weeks back showed there was no tumour or anything in my spine, and I hadn't hurt myself. So the mystery went on! One of the chemo nurses, Joanne, came down, and was the liaison between A & E consultant and my oncologist. It seemed like ages until they had come up with why! To start with they were going to scan me again, to see if the cancer had attacked my spine since my last scans, a massively scary idea. Then with further conversation with my oncologist over in Southampton, they had decided it was going to be too much radiation for another scan. Eventually the penny dropped with the docs, the second injection I had last week was to stimulate my bone marrow into re growth. And it'd be days 7-10 post chemo that the bone marrow would be at its re growth stage. So they came to the conclusion that because my pelvic girdle and lower spine is a very high bone marrow area, this is what has been causing me my pain! A lot less of a whack than thinking it was a new tumour that's for sure! So now it's just going to be a case of altering my dosage of the bone marrow injection next chemo session so the re growth is gradual and not a sudden change, and dosing myself up on morphine over the few days this pain will kick in! So a few hours later, after more IV antibiotics and lots of morphine, I have been allowed to return home, with my Oramorph, pain relief in a bottle!! And so far so good, I can sit down again!! It's the simple things!
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February 2017
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